My Incredible Shrinking World

There are no straight lines when treating diseases, conditions or syndromes. Doctors rarely give an exact regimen to follow. Ask cancer patients how many micro and macro therapeutic decisions they are forced to make. Speak with a Type 1 Diabetic about the different insulins and glucose monitoring kits he must choose from. Ask someone suffering from…

F**K Anatoly’s Mom’s Disease

The Neubie is still impressing the heck out of me. I’ve made more lasting improvements and experienced more carryover with this machine than with all of my other treatments combined. After 4 months of home use, I’m happy to report the following improvements in my left leg: Am I walking better? Nope. Am I improving…

Neubie Update

It was April 2012 when Multiple Sclerosis officially bit me in my ass. Although I’ve been able to slow my deterioration (thank you Ocrevus, and NeuroKinetic tx), significant gait improvements have been out of reach for the past decade. And yet, after only a few weeks of Neubie use, I’m starting to see changes and…

What’s Working Part Two

I’ve written about the benefits of NeuroKinetic Therapy in a previous post. For two years, it has slowly brought dormant muscles back online. Frequency Specific Microcurrents used during our sessions have changed my connective tissue. Although these improvements were slow-going, they stopped me from getting worse. But I couldn’t quite figure out how to best exercise these…

Brains Over Brawn

Although working smart not hard is always my goal when you have a disability, smart work morphs into a necessity. If your weak left side keeps you from carrying a box of items down a flight of steps, you better figure out a smart and safe way to get your stuff to the first floor….

Stuck in a Spasm Chasm

Days two through four out of my Self-Care journey have focused on the bane of my existence: Spasticity. Dr. Tara Tobias explains spasticity as a “movement disorder characterized by a velocity-dependent increase in muscle tone due to hyper-excitability of the reflex arc”. In other words, my body resists any attempts to lengthen certain muscles. If…

100 Days of Self-Care

I was supposed to start this 3 weeks ago. Clearly I need an accountability partner or something. So I’m going to post daily and shame myself into getting my shit together. Luckily I don’t write professionally because this would certainly result in my being fired. Professional journalists do some type of challenge, take notes, then…

Stumbling Towards Self-Care

While playing around with different WordPress themes I noticed that some give a tagline option. As I transition from posting on Facebook to only posting on my blog, I’ve been trying to figure out: What’s the focus of this space? Why should anyone give a damn and stop by?  As I messed around with a…