It was April 2012 when Multiple Sclerosis officially bit me in my ass. Although I’ve been able to slow my deterioration (thank you Ocrevus, and NeuroKinetic tx), significant gait improvements have been out of reach for the past decade. And yet, after only a few weeks of Neubie use, I’m starting to see changes and…
Tag: multiple sclerosis
NewGait => NewMoves => NewHope
I wish I felt comfortable making videos as that would be easier than writing. I’d rather talk than write any day. Because I’m a speech therapist? Maybe. Because I was a teenager in the 80s, constantly on a phone attached to a wall? Probably. In lieu of a quick video update, here’s the latest addition…
What’s Working Part Three
For the last eight years: I can easily walk around my home with and without an AFO and without using a cane. I grab onto walls and furniture as needed. I can walk outside with an AFO and cane for 20 minutes maximum before stopping to rest. I can walk 1.5 MPH on a treadmill…
Disease Progression VS Disuse Progression
When diagnosed with something progressive, healthcare professionals warn you about the bad stuff, while sugarcoating the message just enough to be encouraging. They want you to “prepare for the worst, yet hope for the best.” Your _______ (fill in the blank) diagnosis will either destroy you (so be prepared) or by some miracle everything will…
Stuck in a Spasm Chasm
Days two through four out of my Self-Care journey have focused on the bane of my existence: Spasticity. Dr. Tara Tobias explains spasticity as a “movement disorder characterized by a velocity-dependent increase in muscle tone due to hyper-excitability of the reflex arc”. In other words, my body resists any attempts to lengthen certain muscles. If…
Benefitting from BE Fit Movement Therapy
After experiencing success with a NeuroKinetic based chiropractor, I wanted to find a trainer familiar with NKT as well. Luckily Bianca Eulitz, a Personal Trainer (ACE), Massage Therapist (LMT) and owner of BE Fit Movement Therapy, sees clients close by in Rockville, MD. Normally when I hear the word trainer I immediately think sweaty workouts…
To Share or Not to Share?
Six weeks ago my mom read a post I wrote and wondered (publicly in my comments section I might add) why I don’t share with her the shittier parts of having MS? It was a fair question that got me wondering. Maybe I’m too secretive? Maybe I’m too sensitive? Maybe I’m just an asshole? So I decided to take…
Cognitive Load
When you have a condition that affects mobility, traveling anywhere involves planning, research and in some cases stress-induced, ingenuity. Normally when I attend a Politics and Prose book reading it’s held at Sixth and I. This historic DC venue is one I’ve scoped out, mastered and feel comfortable navigating either via car or public transportation….
LindaBP 