Disease Progression VS Disuse Progression

When diagnosed with something progressive, healthcare professionals warn you about the bad stuff, while sugarcoating the message just enough to be encouraging. They want you to “prepare for the worst, yet hope for the best.” Your _______ (fill in the blank) diagnosis will either destroy you (so be prepared) or by some miracle everything will…

What I’ve Learned from my Eleven Year Shit Show

I spent the entire weekend documenting everything I’ve tried for my MS. Thank God for iCal, my Amazon order history and the “purchase” file I keep in my email app. I’m not surprised by the vast majority of medicines, therapies and equipment as much as I’m shocked at what I forgot. For example I literally had…

Cognitive Load

When you have a condition that affects mobility, traveling anywhere involves planning, research and in some cases stress-induced, ingenuity. Normally when I attend a Politics and Prose book reading it’s held at Sixth and I. This historic DC venue is one I’ve scoped out, mastered and feel comfortable navigating either via car or public transportation….

21 Day Yoga Challenge

Will 21 days of yoga make a difference regarding range of motion (ROM), flexibility and strength if you have MS? Who knows? As much as I love certain modalities that I use to create wellness (Feldenkrais, myofascial work, walking, rowing machine, eliptical & yoga), it’s hard to find something that creates a large, holy shit,…

Coming Back To The Mat

I was a few months from finishing yoga teacher training when I received my MS diagnosis.  Considering how many people swear that yoga healed their MS you would think being a teacher would be an advantage. It would if I were a fly-by-the-seat-of-your-pants, take-life-one-day-at-a-time, obstacles-are-nothing-more-than-opportunities, no-matter-what-my-body-is-my-temple, type of gal. It would if being in my…

Learning To Walk By Rolling With Health

This is the 4th Post about my DBS Journey.  You can read about my earlier progress via Post 1, Post 2 and Post 3. It’s been almost 4 months since I began using my dynamic bracing system to improve my gait. Apparently, it takes more than 15 weeks to reverse a 5-year physical decline which means… Shit’s…

Learning To Walk Part 2

This is post 3 of a multi-post series about my DBS Journey. Make sure to catch Part 1 and  Part 2 as well. Forty-seven years ago when I was mastering the art of walking I was cute, daring and most importantly, closer to the ground. (And lots of Italians with big hands were there to pick me…

The Bracing Process

This is the 2nd post in a series. Click here for part one. The main reason my brace works so wonderfully is because of its customization. For anyone that works with patients via gait training, rehabilitation, physical therapy, orthotics, and orthopedics you’ll appreciate how John Logue at Gait Dynamics worked with me to get me walking again….